We hope you are all ok during these uncertain times. Following on from our last newsletter, we have included some other links and tips for you that may be of interest to you. We will be putting these tips/links and the ones from our previous newsletter on the website and updating the information regularly.
Please do message us to share any of your tips/advice that have been helpful during this time, which we are happy to add on.
The National Theatre is streaming some of their performances for free:
Andrew Lloyd Webber has a selection of musicals that are being shown for 48 hours. Here is the link to find out more:
Vocal Eyes has a comprehensive list of accessible arts/culture that you can access at home:
British Blind Sport has a list of home workouts you may want to try
Our very own lovely Odette Batterel who has Stargardt’s has devised her own “Baked Bean Workout”. All you need is 2 tin cans to hand!
Here is the link: https://youtu.be/1ZNmaS3I_U0
The BBC are now providing daily lesson plans for every year group:
The Department of Education have set up Oak Academy, which is a resource hub of comprehensive online lessons.
Our lovely Alice Cadman who has Stargardt’s runs a music school called Sing Education and has provided great online music resources you can use at home.
Victa has produced links and ideas to do whilst staying at home:
To find out what local support there is for you in the UK,
covidmutualaid.org lists all the national and local groups helping out with COVID-19.
Are you are keen to try to help the research around COVID-19?
A project run by Kings Cross Hospital is helping to track COVID-19 in the U.K with the idea to help slow down the outbreak. It is a daily tracking app that you can download, where you self report how you are feeling physically.
Charity Film Awards
On a positive note, we are extremely delighted to announce that the short film that Ethan and I made for RSBC about sight loss has received the Silver award in the People’s Choice category in the Charity Film Awards. There were over 400 charities that entered the awards, and we are ecstatic to have got this far in the competition and received this accolade. This would certainly not have been possible without the support and votes from the public, so THANK YOU so much for your support. It has really helped raise awareness of Stargardt’s and vision loss.
Here is the link to the film:
Your COVID-19 Stories
As scary and challenging as it can feel at this moment, we want to try to remain positive and would love to hear how you have been spending your time during this pandemic. Please do message us and send us any pictures via social media or email them to me at: firstname.lastname@example.org
I have found a passion for cooking and have been busy getting creative in the kitchen trying out new recipes.
Toby one of our Trustees who has Stargardt’s was inspired by the Stargardt’s Connected cooking session we held in February and has been trying some recipes.
Unfortunately we have had to cancel/postpone many of our fundraising activities due to the COVID-19 Pandemic, but there are many very easy ways that you could still support us.
Stargardt’s Connected is registered with Easyfundraising and Amazon Smile, which means you can raise FREE donations for us if you shop online.
For more details, please see our fundraising factsheet on the website.
On a final note, we want to say that please do not hesitate to contact us if you need support/advice- we are always here to help.
Sending you all positive wishes, stay safe and take care.
Chief Executive Officer