BBC Children in Need “Life in Lockdown” Documentary
In early Autumn we were asked to be in a BBC Children in Need special documentary called “Life in Lockdown” which showcases children and young people experiencing a variety of challenges, as they cope with the effects of the pandemic. We were one of the 4 families chosen to speak about our experiences, with my son Ethan talking about Stargardt, his challenges and what helped him during lockdown. You can find more information about the programme on this link below. Please tune in tomorrow- Wednesday 11th November at 7:30pm on BBC1.
Upcoming Zoom Session Saturday 21st November 12-2pm UK Time
We are very excited to have Professor Michel Michaelides join us for the first hour of our next Stargardt’s Connected Zoom session. Professor Michaelides is a Consultant Ophthalmologist at Moorfields Eye Hospital, and one of the leading experts on Stargardt. He is also our Charity Medical Advisor. He will be talking about the latest Stargardt research and then be holding a question and answer session.
The second hour will be an informal session where you will have the opportunity to speak to others affected by Stargardt and share stories and tips.
Thank you to those who have registered already. We really look forward to meeting you on the 21st!
For those that have registered, please submit any questions before the meeting that you may want to ask Professor Michaelides to firstname.lastname@example.org.
If you have not yet registered and you would like to, then the joining details are below. Once you have registered you will receive a confirmation email asking you to submit any questions you would like to ask Professor Michaelides.
This will help Professor Michaelides address your interests. Of course there will be an opportunity for you to ask questions during the session too.
You are invited to a Zoom meeting.
When: Nov 21, 2020 12:00 PM London
Register in advance for this meeting:
After registering, you will receive a confirmation email containing information about joining the meeting.
We hope you can join us!
Chief Executive Officer