I hope you are all doing well.
After the success of our last Zoom get together, we would love to invite you to our next Stargardt’s Connected Zoom session. This will take place on
Sunday 19th July from 12pm to 2pm.
This is a great opportunity to informally connect with anyone affected by Stargardt’s, whether it’s yourself or a family member.
It was wonderful meeting those that could come to our last Zoom session and it showed the importance of being connected through sharing tips and challenges, especially during the pandemic we are facing. We were very excited to have people from all over the country and even outside the U.K. join.
This time round we will be introducing breakout sessions so smaller groups can chat together informally. If you would like to join, please register in advance for this meeting. The registration also contains a form where you can specify what you might want to discuss in the groups, so that we can put you in the correct breakout session. These are informal sessions where people can chat and share hints and tips.
Register in advance for this
After registering, you will receive a confirmation email containing information about joining the meeting.
Please register by Friday 17th July, so that we are aware of numbers and have time to plan the meeting.
For the children, Alice Cadman and myself are organising a separate Zoom session on Tuesday July 21st from 11am-12pm. This session will be an informal fun get together, where children and young people will get the chance to chat to one another and take part in a short fun quiz. We will send out registration information about this on a separate email soon, but please share the date with any children affected by Stargardt’s .
Take care and hope you can join us!
Chief Executive Officer